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MEDIA RELEASE

PO Box 10123
The Terrace
Wellington, 6143
New Zealand

Transparency International New Zealand
3 August 2020
Patron, Lyn Provost

Advocacy Success: HRC to sign WHO joint statement on public disclosure of results from clinical trials

Joint media release by Mesh Down Under and Transparency International New Zealand

Transparency International New Zealand and Mesh Down Under are celebrating success in their advocacy for greater transparency in clinical trials. Together they advocated for the Health Research Council (HRC) to be signed up to the World Health Organisation (WHO) Joint statement on public disclosure of results from clinical trials. This has now happened after endorsement by the Ministry of Health.

The Joint Statement sets out policy and monitoring requirements for mandatory time frames for registration and public disclosure of the results of clinical trials.

Charlotte Korte, spokesperson for Mesh Down Under says “The Health Research Council are making a strong commitment to ensure that all requirements are being met for HRC funded clinical trials and New Zealand’s commitment to the joint statement is a significant and important step.”

“Many clinical researchers are already following best practice, but this commitment should show up those who are not registering clinical trials or reporting on their clinical trial results publicly and in good time. The HRC signing this statement will be a motivator for researchers to step up their game,” Korte adds.

Julie Haggie, CEO of Transparency International New Zealand says “this is a good step towards improving accurate and timely public access to clinical trial information. Unpublished or ‘invisible’ trials can result in harmful drugs and devices being released onto the market, as seen in the case of surgical mesh.”

Haggie continues, “Our hope is that this improves decisions around patient care resulting in patients getting more accurate information on the medical procedure, treatment or drug they are being offered.“

Greater transparency will also reduce publication bias caused by only reporting where clinical trials show positive outcomes.

We congratulate the Ministry of Health and the Health Research Council for taking this action.

 


Media release pdf.

Background information for journalists

  1. Media Contacts

    Charlotte Korte

    Spokesperson for Mesh Down Under

    0210 556 286

    cmkorte@outlook.com


    Julie Haggie

    Chief Executive Officer

    Transparency International New Zealand

    +64 27 498 9126

    Julie.haggie@tinz.org.nz

  2. About Mesh Down Under

    Mesh Down Under is dedicated to support and information sharing for New Zealanders injured by surgical mesh. Their website is meshdownunder.co.nz.

  3. About Transparency International

    Transparency International is a global civil society coalition based in Berlin, leading the fight against corruption. It compiles a number of measures of different aspects of corruption including the Corruption Perceptions Index, the Global Corruption Barometer, and the Bribe Payers Index. Information on Transparency International can be found at www.transparency.org.

  4. About the New Zealand chapter of Transparency International

    The local chapter of Transparency International works to actively promote the highest levels of transparency, accountability, integrity and public participation in government and civil society in New Zealand and the Pacific Islands. Find TINZ at www.transparency.org.nz.

    Transparency International New Zealand has several projects designed to support greater integrity.  These can be viewed in our Annual Report, and include:

    • National Integrity System Assessment, a risk assessment of the pillars of democracy
    • Development of a Financial Integrity Systems Assessment Tool, for use with the financial sector;
    • Leaders Integrity forums for senior public leaders
    • Submissions and advocacy
    • Thought leadership through communications and events.

    Chief Executive Officer

    Julie Haggie

    Transparency International New Zealand

    +64 27 498 9126

    Julie.haggie@tinz.org.nz

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